Update on research 'toward a more holistic understanding of transitional care'
Recognizing the high risks and increased costs associated with care transitions has led to new research on interventions to enhance communication and continuity of care. However, new evidence has not always translated into meaningful improvement in the outcomes most important to patients. For this reason, in addition to important outcomes like hospital readmission rates, PCORI has supported research on patient-centered outcomes such as quality of life, caregiver burden, and healthcare decision-making.
A particular challenge is comparing results between studies, or identifying the most important aspects of these multi-component interventions. Providing evidence about the comparative effectiveness of interventions to improve decision making is a key goal of PCORI's investment in transitional care. The supplement presents findings from 11 of the 30 PCORI-funded transitional care studies, representing a wide range of health conditions, healthcare settings, patient characteristics, and patient outcomes.
A paper by Sabina B. Gesell, PhD, of Wake Forest School of Medicine and colleagues highlights the findings and implications of the PCORI transitional care portfolio so far. In discussions with researchers from nine studies, the authors identify three key themes:
Delineating the function versus form of transitional care interventions
While "function" refers to the core purposes of the intervention, "form" refers to the strategies and activities needed to carry out its function. It is critical to distinguish functions from forms. A pragmatic approach would allow for "flexible options for delivery while maintaining appropriate fidelity to the intervention."
Evaluating the process supporting implementation and the impact of interventions
Understanding the processes involved in program adaptations – planned and unplanned – is essential to assessing their actual effects, intended or unintended.
Engaging stakeholders in the design and delivery of interventions
A key aspect of the PCORI approach is engaging stakeholders – including patients, healthcare providers, and advocacy groups or policymakers – in the design and delivery of interventions. Partnering with stakeholders is critical for ensuring that appropriate interventions are designed and successfully disseminated, especially interventions that involve system change. Stakeholders can also play a key role in disseminating the research findings to broader audiences.
The introduction includes an overview of PCORI's Transitional Care Evidence to Action Network: a learning community designed to promote collaboration among researchers and stakeholders, and thus to enhance the collective impact of the new research PCORI has funded on patient-centered transitional care interventions.
"The papers in this Special Issue articulate challenges and lessons learned, and identify new directions for measurement, patient and stakeholder engagement, implementation, and methodological approaches that reflect the complexity of transitional care research," Dr. Parry and coauthors conclude. "They also move us toward a more holistic understanding of transitional care that integrates social needs and lifespan developmental transitions into our approaches to improving transitional care."
Read “Implementation of Complex Interventions: Lessons Learned From the Patient-Centered Outcomes Research Institute Transitional Care Portfolio.”
Read “Patient-Centered Approaches to Transitional Care Research and Implementation: Overview and Insights From Patient-Centered Outcomes Research Institute’s Transitional Care Portfolio.”